Friday, June 27, 2008
Hadley still does! =)
Our sweet girl, Hadley, was born on September 27th, 2000. She was perfect and gorgeous and we were so thankful for her. After a few years of going around and around with doctors about something being 'wrong' we finally got a definite answer. Yes, there was something wrong (I wasn't losing my mind after all). Hadley was diagnosed on 4-22-04 at the age of 3 with a very large brain tumor. She has been on treatment for her tumor since then. In February of this year we got the news that she had relapsed. In addition to the original tumors on the right side of her brain, she now had tumor on the left side of her brain. The new tumor was growing much quicker than the original tumor areas. On May 30th we did another MRI that revealed even more growth and spread. The following week we, with her medical team, made the heartbreaking decision to end treatment and let Hadley have some magic in her life.
Hadley is a 7 year old little girl who loves life. She is happy and funny and loves to be the center of attention. She loves all things frilly and girly. She has a beautiful innocence that I am very envious of and grateful for
Hadley has two brothers Keegan (6) and Liam (4). They are great boys who have been wonderful brothers to Hadley. She loves them both dearly. I'm sure that the compassion and acceptance they have learned through Hadley's journey will carry them far in life.
Hadley's daddy, my husband, is a Petty Officer in the US Coast Guard. We'd love nothing more than to be able to grant Hadley's every wish while she is here with us. But, like most families these days, we are living paycheck to paycheck. If you are willing and able to help us give Hadley some magic we would be eternally grateful.
To learn more about Hadley and her family please feel free to visit: www. HadleyFox. com
Thank You So Much!!!
Friday, June 20, 2008
If Brandon were sitting here his eyes would be rolling back in his head. Hadley is on a High School Musical 2 kick. She loves this movie. Adores it. I don't know that Brandon could hate it any more than he does. *ugh* Even I have had the summertime song stuck in my head. Maybe I'll add it to our music queue so you can enjoy it as well. *snort*
So, summer break is under way. The kids are all out of school. We are in Portland. All of our household goods are in storage and we are technically homeless. *snort* We were supposed to be renting a house from some friends in Portland who had accepted a job in San Diego. That job wound up falling through and now they are a couple weeks from the end of the application process with another church in SD. So, we're sort of all hanging out in the house until we know what's going on. Thankfully it's a 6 bedroom house so nobody's sleeping in the living room...yet. =)
I have been sick for a little over a week now. It started out seeming like allergies but it wasn't long before I realized it was obviously not. I am just now starting to get my voice back...but, it's still all Bonnie Rait-ish. Hopefully it'll be back to normal soon. =) I've never had a super feminine voice but, I really don't love sounding like an ultra heavy smoker...or a guy. *ack*
Keegan is in swim lessons and loving it. Hadley and Liam will be signing up soon. Keegan's friend Aubrey was signing up for this session and I decided to let him take them with her. He's been having so much fun and is so proud of his accomplishments. =)
Liam, in true little boy fashion, is covered from head to toe in scrapes, scratches, bruises and scabs. He is a total brut...until he gets hurt...then all he wants is his mama. It's so hard being four. Poor Liam.
Brandon has reported to his new unit. He's been there for a full work week now and is really impressed. He's excited to get to work and complete his qualifications so he can start gaining responsibility. I'm looking forward to the station schedule. He'll have a few weekdays off every week and will have every other Fri/Sat/Sun off. The only downfall is that when he's working he's THERE. No coming home/leaving the station etc. So, I guess it'll kind of be like a business trip or two every week. Except that when he's home...he's HOME. =) I think it'll be nice...we'll see.
In case any of you missed it on Hadley's website...she was deemed "terminal" a few weeks ago. I really hate that word but, it is what it is. We have no idea how long we have with her. I think we may do an MRI at the end of the summer if there isn't an obvious sign of decline. But, she is on what the medical field calls "compassionate care". Meaning that we have changed our focus from treating the tumors to keeping Hadley happy and comfortable. Obviously this is a really hard time for our family. We would appreciate all the prayers and love you can spare.
Alright, I'd better wrap this up.